A research project carried out by Swansea University has revealed significant problems with healthcare services for rheumatology patients throughout Wales, including a lack of specialised diagnostic resources, extended waiting periods for specialist appointments, and difficulties accessing doctors based beyond the area.

The research was led by Rupert Harwood from Swansea University Medical School, who noted that while the NHS Wales Prior Approval (Out of Area) Policy purports to guarantee equal access, it seems to place those with limited financial means at a disadvantage since they cannot afford to pay for private treatment in England.

Mr Harwood faced a wait of roughly ten years before obtaining an out-of-area referral to see a neuro-ophthalmologist in England after developing visual problems in 2016.

He explained that, much like numerous patients he interviewed during the study, he strongly believes in the core values of the NHS, yet felt profoundly let down that it proved inaccessible when he needed it most.

In the small group examined, people in Wales reported experiencing on average around eleven years between noticing their first symptoms and receiving a diagnosis of lupus or similar systemic rheumatic disorders.

This period is approximately four years longer than the usual timeframe seen across the UK.

The study recommends a thorough review of the NHS Wales out-of-area referral system and improvements to the availability of diagnostic testing.